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Our Response to COVID-19

How Lustgarten is Responding to COVID-19

A letter from the CEO

Hi and thank you for checking in with the Lustgarten Foundation to learn more about our response to the novel coronavirus, or COVID-19.

Seemingly overnight, COVID-19 has dramatically changed the world in which we live. I sincerely hope you and your loved ones are well.

We at the Lustgarten Foundation are doing our best to follow the CDC guidelines, practice social distancing and to help flatten the curve. As of Tuesday, March 17, all staff are working remotely, but we are staying in touch with one another and continue to be here for you. Though images from major cities and small towns across the country almost make it feel that life has stopped, we know the fight against pancreatic cancer cannot wait.

For now, we have postponed or cancelled all events through the end of May—if you were already registered for one of these events, you should have received an email with everything you need to know. If you missed the email or are just now considering registering for an event, we’ve posted all the details below. Of course, if you have questions about pancreatic cancer, fundraising, walks or anything else, please get in touch. Call us tollfree at 866-789-1000 or send an email to contactus@lustgarten.org. We check the messages daily and one of us will get back to you as soon as possible.

To keep up with the latest pancreatic cancer research information and Lustgarten Foundation activities, follow us on Facebook, Instagram, LinkedIn and Twitter.

We know this is a difficult and uncertain time, and we also know we will get through this together. Please follow the recommendations of your healthcare provider and practice social distancing as much as possible (but remember, Skype and FaceTime are great options to keep you connected with friends and family) and stay healthy and safe.

 

 

Kerri Kaplan,
President and CEO

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Find a Clinical Trial

Clinical trials hold the promise of discovering new treatments and will bring us even closer to a cure. In fact, today patients are living longer from successful pancreatic cancer treatments, as a direct result of past clinical trials. If you have pancreatic cancer, a clinical trial may be your best option. Speak with your doctor to find out if a clinical trial might be right for you.

Our Lustgarten and Let’s Win Clinical Trial Matching Service provides free and unlimited access to current, verified clinical trial information through our partner, Emerging Med. Patients and their loved ones can call 1-800-535-1867 Monday-Friday 8:30 a.m.-6 p.m.ET to speak with a Clinical Trial Navigator.

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GENetic Education, Risk Assessment

Genetics play a role in up to 10 percent of pancreatic cancer cases. However, family members of pancreatic cancer patients often are not aware that certain genetic mutations can be passed down, which is why having information about genetic risk is so important. The GENERATE (GENetic Education, Risk Assessment, and TEsting) Study is designed for people who have a close relative with pancreatic cancer that was caused by an inherited mutation in a gene. The goal of this study, which will enroll up to 1,000 participants, is to improve genetic testing and cancer prevention in family members of pancreatic cancer
patients with identifi ed mutations.

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Double Your Impact

Gifts made by Midnight on December 31, 2019 will be matched dollar for dollar!

Clinical trials are critical to scientific breakthroughs and hold the promise of increasing patients’ quality of life, improving outcomes, and giving patients and their families more time together. Lustgarten-funded trials could one day lead to new treatment options and a potential cure for patients like Charlie, a patient who has undergone surgery and other treatments.

 

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#GivingTuesday
Double Your Donation!

Imagine a world with a cure for pancreatic cancer.

Now imagine you have the power to make that dream a reality — because you do!
Thanks to a generous $175,000 match, it’s easier than ever to make a difference on #GIVINGTUESDAY.

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Holiday
Rock & Roll Bash

Join us on Decemer 3rd for a night of holiday fun – dancing, delicious food and drinks, and an exclusive performance by the world-famous Radio City Rockettes.

The Madison Square Garden Company and AMC Networks host the Holiday Rock & Roll Bash to benefit the Lustgarten Foundation. To date, this fabulous event has raised more than $24 million for pancreatic cancer research.

The Lustgarten Foundation is America’s largest private foundation dedicated to funding pancreatic cancer research. Based in Woodbury, NY, the Foundation supports research to find a cure for pancreatic cancer.

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Navigating Pancreatic Cancer

A Guide for Patients & Caregivers

Receive Your Free Copy

Patients and caregivers can also request a free hard copy of this book at contactus@lustgarten.org.  Please write book request in the subject line and provide your name, mailing address, telephone number and email address.

Download a free copy of Navigating Pancreatic Cancer: A Guide for Patients and Caregivers

Download Your Copy Now

Our updated Navigating Pancreatic Cancer: A Guide for Patients & Caregivers handbook is here! Thanks to an educational grant from Celgene and support from Ipsen Pharmaceuticals, this handbook is a valuable resource and roadmap for patients and caregivers faced with a pancreatic cancer diagnosis. Part One addresses immediate needs, including a checklist for newly diagnosed patients; guidance on making treatment decisions; surgery; drug treatments; clinical trials; use of complementary and alternative methods; supportive care; coping; and caring for a loved one.

Part 2 offers background information about the disease and its causes, signs and symptoms, and diagnosis.

We hope this guide will empower patients and caregivers to ask bold questions, seek out cutting-edge treatments, and confront the unique challenges of pancreatic cancer head-on, armed with all of the knowledge needed to make informed decisions.

Bulk orders are available to professionals only. For additional copies to share with colleagues or patients, please fill in our book order form. The books are free, but we do charge $20 per carton of books for shipping and handling. Each carton contains 40 books.

At Lustgarten, we are making progress every day in our fight against pancreatic cancer. Our commitment to everyone impacted by pancreatic cancer has never been stronger, and we will continue to fund research until a cure is found. We believe it’s no longer a matter of “if” we are going to conquer this disease. It’s a matter of when.

Download Your Copy Now

Related Topics

View our blog series.
Learn how you can get involved.
Find an event in your community.

 

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Nearly $1 Million Raised for Research!

Thank You, Long Island!

Our Long Island Walk was a huge success, and we are incredibly grateful to our presenting sponsor, Northwell Health, and all of the walkers, team members, researchers, volunteers, speakers and other sponsors who shared this day of hope with us. Because of your support, we had one of our largest crowds to date, welcoming 7,000 participants, including many walkers who have been with us since our first walk in 2001 and family members who have lost loved ones to this disease but who are more committed than ever to joining us on our journey toward a cure.

2019 Long Island Walk Charles F. Dolan

We are honored that our founder, Charles Dolan, addressed the crowd with his heartfelt speech about how proud Marc Lustgarten would be to witness the breakthroughs made in treating and detecting this disease. The most inspiring part of the walk was seeing the more than 20 survivors who participated in our ribbon-cutting ceremony. They shared their stories, celebrated with their families, and served as a powerful example of how much progress we are making through research.

Thanks to your generosity, we are well on our way toward our $1 million goal. We encourage you to continue fundraising, as your page will stay open through the rest of the year. We look forward to seeing you at the Long Island Walk’s 20th anniversary next fall!

View all walk photos.

 

Related Topics:

Watch News12’s report on the walk.
Read Newsday’s article about the walk.

 

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Jeopardy! The Greatest Of All Time

Who is the greatest Jeopardy! contestant of all time?

Answer: Tune in Tuesday, January 14th as the tournament continues!

Watch (and play along!) as Ken Jennings, Brad Rutter, and James Holzhauer (aka ‘Jeopardy James’) compete for the #JeopardyGOAT title in the “Greatest of All Time” tournament. The first contestant to win three matches will go down in history as the #JeopardyGOAT.

You can cheer your favorite contestant on or start your own #JeopardyGOAT tournament from the comfort of your own home. Invite friends and family over for a viewing party and challenge them to participate in a virtual tournament. For each correct answer, support the Lustgarten Foundation by donating $1, or another amount of your choosing, to pancreatic cancer research. Whether it’s $10, $100, or $1,000, every dollar makes a difference and 100% of every donation goes directly to pancreatic cancer research.

What is #WeLoveYouAlex?

Even though the Jeopardy! Tournament of Champions has ended, please continue to join the tournament competitors – including “Jeopardy! James” Holzhauer, Dhruv Gaur and Steven Grade – in honoring Alex Trebek and the entire pancreatic cancer community by donating to research. Now through December 31, donate to our #WeLoveYouAlex campaign to increase awareness and funding for pancreatic cancer research.

If you missed it, Dhruv Gaur was the contestant and college champion who answered “We Love You, Alex” during the recent Jeopardy! Tournament of Champions. This answer choked up the beloved game show host and earned Dhruv a seat at The Ellen DeGeneres Show, where he was presented with a $25,000 check from Shutterfly for the Lustgarten Foundation.

As the season of giving approaches, we hope you will join the movement to fund pancreatic cancer research. As Mr. Trebek said when he was first diagnosed, “Keep the faith and we’ll win. We’ll get it done.” With your support, we will definitely be able to “get it done” – by funding more research, we are moving closer to finding a cure.

We WELCOME you to our community and THANK YOU for your life-changing support!

Play Along to Support Research!

We Love You Alex

Join with Jeopardy! fans who are committed to raising awareness and funding for pancreatic cancer research! During the Jeopardy! Tournament of Champions episodes airing on November 14-15, viewers are encouraged to donate $1 to the Lustgarten Foundation for each answer they guess correctly. And, thanks to separate funding to support administrative expenses, 100% of your donation goes directly to pancreatic cancer research.

Jeopardy! champion Steven Grade organized this play-along game in honor of host Alex Trebek and in memory of Larry Martin, a Jeopardy! Teachers Tournament champion who passed away from pancreatic cancer earlier this year.

Grade tweeted, “Play one night, play both nights, donate an amount that is right for you, or help spread the word to Jeopardy! watchers and non-watchers alike–every little bit helps, and every little bit helps to honor Alex, Larry, and all those who are fighting and have fought pancreatic cancer.” Donate Now.

Alex Trebek Lends His Voice To Pancreatic Cancer Awareness Month

We are grateful that Jeopardy! host Alex Trebek has shared his story and helped to raise global awareness for pancreatic cancer and Pancreatic Cancer Awareness Month with his PSA for the World Pancreatic Cancer Coalition. Join us throughout the month of November as we unveil our new #PutTheUinCURE social media campaign and encourage you to get involved, and as we highlight the need for continued research, more effective treatments, and methods to help diagnose this disease at an earlier stage.

Get Involved During Awareness Month

“Keep the faith and we’ll win.” — Alex Trebek

Alext Trebek Jeopardy host

On March 6th, television icon Alex Trebek, who has hosted Jeopardy, America’s Favorite Quiz Show®, since 1984, announced that he was diagnosed with Stage IV pancreatic cancer in a video posted to the show’s official YouTube account. On behalf of our community of patients, caregivers, researchers, loved ones and survivors all impacted by this disease, we are sending Mr. Trebek our thoughts and best wishes for his treatment and recovery.

Mr. Trebek joins more than 56,000 other Americans who will be diagnosed this year. Pancreatic cancer is often called a silent disease because many times no signs or symptoms are noticed until the cancer is in an advanced stage, when surgery is typically not an option and effective treatments are limited.

Mr. Trebek is not letting this prognosis discourage him from fighting. As he shares in his video message, “I plan to beat the low survival rate statistics for this disease…Keep the faith and we’ll win. We’ll get it done.”

At the Lustgarten Foundation, we are relentlessly focused on “getting it done.” Pancreatic cancer research is moving faster than ever before, and there has never been a more hopeful time for patients. The researchers we fund are committed to identifying new treatments and tailoring therapy to each patient. We are dedicated to changing patients’ lives and making sure that many more patients become long-term survivors.

Today and every day, we stand with Mr. Trebek, his loved ones and fans, and the thousands of other patients courageously fighting this disease and inspiring us to support even more research. Please know we are with you as you navigate through this disease, and we will not quit until a cure is found.

 

Related Topics:

Find the help you need through these resources.
Read about the research we are funding in drug development.
Learn more about our mission and milestones.

Related Media:

KWWL.com:  Pancreatic Cancer Remission Rates Remain Low
Boston25 News:  Dana-Farber Pancreatic Cancer Specialist Talks Symptoms, Treatments for Disease
News12:  Longtime ‘Jeopardy’ Host Alex Trebek Announces Stage 4 Pancreatic Cancer Diagnosis
PIX 11:  Fight for Survival

Get Involved During Awareness Month Survivor Stories

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Possible drug target for pancreatitis

Pancreatitis is an inflammation of the pancreas that accounts for 275,000 hospitalizations in the United States annually. Patients who suffer from hereditary pancreatitis have a 40 to 50 percent lifetime risk of developing pancreatic cancer. Dannielle Engle, a former Cold Spring Harbor Laboratory (CSHL) Cancer Center postdoctoral fellow who was recently appointed Assistant Professor at Salk Institute, studies the progression of pancreatitis to pancreatic cancer. She has focused on a potentially powerful biomarker, a chemical structure created by complex sugar molecules called CA19-9, since CA19-9 is elevated in patients with pancreatitis and pancreatic cancer.

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Pancreatic Cancer News


Drug Combination Could Boost the Effectiveness of Immunotherapy against Pancreatic Cancer

31. 3. 20 ladmin

Pancreatic cancer is one of the most challenging cancers to treat. In part, that’s because pancreatic tumors tend to be surrounded by scar tissue. This dense layer prevents cancer medicines and cancer-fighting immune cells from penetrating to the interior. A new study from Scott Lowe’s lab in the Sloan Kettering Institute, published March 31 in the journal Cell, provides evidence that […]

Why pancreatic cysts doesn’t mean you have cancer

30. 3. 20 ladmin

The pancreas is one of the hardest-working organs in our body. It’s a power-house for fueling your body, keeping your blood sugar in balance, but also helping in digesting food. But it’s one even experts don’t understand completely. And there’s one problem that’s especially misunderstood. Sometimes, during abdominal scans for other reasons, doctors discover cysts […]

New blood test can detect 50 types of cancer

30. 3. 20 ladmin

System uses machine learning to offer new way to screen for hard-to-detect cancers. A new blood test that can detect more than 50 types of cancer has been revealed by researchers in the latest study to offer hope for early detection. The test is based on DNA that is shed by tumours and found circulating […]

Pancreatic cancer research interview with a leading oncologist, Dr. Matthew Weiss

26. 3. 20 Lustgarten Foundation

Dr. Matthew Weiss is one of the nation’s leading surgical oncologists, specializing in surgery for liver and pancreatic cancer, and benign hepatopancreatobiliary diseases, with specific expertise in minimally-invasive approaches. Read our insightful Q&A with Dr. Matthew Weiss. What role does surgery play in the treatment of pancreatic cancer, and why is surgery so important?  Surgery […]

Artificial Intelligence: A Game Changer for Pancreatic Cancer Research

23. 3. 20 Lustgarten Foundation

What does artificial intelligence (AI) have to do with helping doctors detect pancreatic cancer at an earlier stage? As it turns out, a lot. AI refers to machines programmed to mimic human reasoning with the goal of learning from failure and providing the best recommendation for a specific subject. In the case of pancreatic cancer, […]

Improvements in screening may be linked to increase in early-stage pancreatic cancer diagnoses

20. 3. 20 ladmin

Increases in the proportion of patients diagnosed with pancreatic cancer at an earlier stage and younger age may be due to improvements in early detection and diagnosis, according to study results published in Journal of National Cancer Institute. “This research was prompted by our own experience undertaking pancreatic screening,” Michael Goggins, MD, professor of pathology, medicine and oncology at […]

OncoSil granted FDA Breakthrough Device Designation

18. 3. 20 ladmin

OncoSil Medical Ltd (ASX:OSL) today announced that the OncoSilTM device has reached a significant milestone, receiving Breakthrough Device Designation by the US Food and Drug Administration (FDA) for the treatment of unresectable locally advanced pancreatic cancer in combination with systemic chemotherapy. OncoSilTM is a targeted radioactive isotope (Phosphorus-32) that’s implanted directly into a patient’s pancreatic […]

Pancreatic Cancer Myths and Common Questions, Answered

13. 3. 20 ladmin

Pancreatic cancer isn’t as common as some other cancers, but it is somewhat renowned for being difficult to treat. Symptoms usually don’t show up until the cancer has grown to an advanced stage, but now, more than ever, patients with pancreatic cancer have good reason to be optimistic about their futures due to advances researchers […]

Engineered bone marrow cells slow growth of prostate and pancreatic cancer cells

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In experiments with mice, researchers at the Johns Hopkins Kimmel Cancer Center say they have slowed the growth of transplanted human prostate and pancreatic cancer cells by introducing bone marrow cells with a specific gene deletion to induce a novel immune response. The results, described January 2020 in the Journal for ImmunoTherapy of Cancer, suggest that the technique […]

Genetic testing is helping prevent cancer and changing treatment plans

5. 3. 20 ladmin

It is a truth universally acknowledged that cancer prevention and early cancer detection saves lives. As scientists and physicians at the major cancer centers work together to unravel the link between genetic alterations and cancer risk, genetic testing is rapidly becoming an impactful tool for matching patients to individualized cancer screening programs. Often called the “Angelina […]

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