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Holiday
Rock & Roll Bash

Join us on Decemer 3rd for a night of holiday fun – dancing, delicious food and drinks, and an exclusive performance by the world-famous Radio City Rockettes. The Madison Square Garden Company and AMC Networks host the Holiday Rock & Roll Bash to benefit the Lustgarten Foundation. To date, this fabulous event has raised more than $24 million for pancreatic cancer research. The Lustgarten Foundation is America’s largest private foundation dedicated to funding pancreatic cancer research. Based in Woodbury, NY, the Foundation supports research to find a cure for pancreatic cancer.

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Navigating Pancreatic Cancer

A Guide for Patients & Caregivers

Receive Your Free Copy

Patients and caregivers can also request a free hard copy of this book at contactus@lustgarten.org.  Please write book request in the subject line and provide your name, mailing address, telephone number and email address.

Download a free copy of Navigating Pancreatic Cancer: A Guide for Patients and Caregivers

Download Your Copy Now

Our updated Navigating Pancreatic Cancer: A Guide for Patients & Caregivers handbook is here! Thanks to an educational grant from Celgene and support from Ipsen Pharmaceuticals, this handbook is a valuable resource and roadmap for patients and caregivers faced with a pancreatic cancer diagnosis. Part One addresses immediate needs, including a checklist for newly diagnosed patients; guidance on making treatment decisions; surgery; drug treatments; clinical trials; use of complementary and alternative methods; supportive care; coping; and caring for a loved one.

Part 2 offers background information about the disease and its causes, signs and symptoms, and diagnosis.

We hope this guide will empower patients and caregivers to ask bold questions, seek out cutting-edge treatments, and confront the unique challenges of pancreatic cancer head-on, armed with all of the knowledge needed to make informed decisions.

Bulk orders are available to professionals only. For additional copies to share with colleagues or patients, please fill in our book order form. The books are free, but we do charge $20 per carton of books for shipping and handling. Each carton contains 40 books.

At Lustgarten, we are making progress every day in our fight against pancreatic cancer. Our commitment to everyone impacted by pancreatic cancer has never been stronger, and we will continue to fund research until a cure is found. We believe it’s no longer a matter of “if” we are going to conquer this disease. It’s a matter of when.

Download Your Copy Now

Related Topics

View our blog series.
Learn how you can get involved.
Find an event in your community.

 

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Nearly $1 Million Raised for Research!

Thank You, Long Island!

Our Long Island Walk was a huge success, and we are incredibly grateful to our presenting sponsor, Northwell Health, and all of the walkers, team members, researchers, volunteers, speakers and other sponsors who shared this day of hope with us. Because of your support, we had one of our largest crowds to date, welcoming 7,000 participants, including many walkers who have been with us since our first walk in 2001 and family members who have lost loved ones to this disease but who are more committed than ever to joining us on our journey toward a cure.

2019 Long Island Walk Charles F. Dolan

We are honored that our founder, Charles Dolan, addressed the crowd with his heartfelt speech about how proud Marc Lustgarten would be to witness the breakthroughs made in treating and detecting this disease. The most inspiring part of the walk was seeing the more than 20 survivors who participated in our ribbon-cutting ceremony. They shared their stories, celebrated with their families, and served as a powerful example of how much progress we are making through research.

Thanks to your generosity, we are well on our way toward our $1 million goal. We encourage you to continue fundraising, as your page will stay open through the rest of the year. We look forward to seeing you at the Long Island Walk’s 20th anniversary next fall!

View all walk photos.

 

Related Topics:

Watch News12’s report on the walk.
Read Newsday’s article about the walk.

 

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Possible drug target for pancreatitis

 Pancreatitis is an inflammation of the pancreas that accounts for 275,000 hospitalizations in the United States annually. Patients who suffer from hereditary pancreatitis have a 40 to 50 percent lifetime risk of developing pancreatic cancer. Dannielle Engle, a former Cold Spring Harbor Laboratory (CSHL) Cancer Center postdoctoral fellow who was recently appointed Assistant Professor at Salk Institute, studies the progression of pancreatitis to pancreatic cancer. She has focused on a potentially powerful biomarker, a chemical structure created by complex sugar molecules called CA19-9, since CA19-9 is elevated in patients with pancreatitis and pancreatic cancer.

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Tune in with
“Jeopardy! James”

Join “Jeopardy! James” in the Fight

Tune in tonight, Monday, September 9th, as the 36th season of Jeopardy! kicks off. We will be watching and look forward to cheering on the iconic game show host Alex Trebek on as he reprises his role for this upcoming season after his pancreatic cancer diagnosis five months ago and subsequent treatment.

In a recent article, Trebek promised viewers an entertaining season ahead. “We’ve got some exciting things coming up, and I can’t wait to share them with all of you,” said Trebek in the article. “Let me tell you, it’s going to be a good year.”

Even Jeopardy! James, James Holzhauer, who won an impressive 32-straight games on the show, will be tuning in to wish his friend well. Watch the short video he shared ahead of the show’s premiere below.

Trebek’s courageous fight is giving hope to thousands of patients and their families who have been affected by this disease. Join us and Jeopardy! James tonight as Jeopardy! returns.

In honor of Trebek and everyone else impacted by pancreatic cancer, please consider donating $36 for season 36. 100% of your donation goes directly to research leading toward a cure.

Follow the Lead of “Jeopardy! James”

Naperville Walk Team

We all watched in disbelief as Alex Trebek shared in March that he was suffering from Stage IV pancreatic cancer. This news hit Naperville, IL Walk leader Ann Zediker especially hard, as she lost her own father to the disease in 2010, just five months after he was diagnosed. She watched a man who loved life deteriorate during treatment. Now, Ann is fighting for continued research and a cure.

This year, Jeopardy! champion James Holzhauer, who won an impressive 32-straight games, caught her attention. After seeing him on the show, she learned that he was born and raised in Naperville, and she invited him to attend this year’s walk on Saturday, July 14th. While he couldn’t attend, he has added his support to the Naperville Walk in honor of Alex Trebek and all the other survivors. His generous donation of $1,109.14 represents his daughter’s birthday (November 9, 2014).

We encourage you to follow James’ example and donate amounts corresponding to your birthday, in honor or in memory of a loved one, or in support of Alex Trebek.

Your contribution will make a difference in detecting the disease earlier, developing better treatments and eventually finding a cure! And, thanks to separate funding to support administrative expenses, 100% of your donation goes directly to pancreatic cancer research.

Register Donate

 

Related Media:

NBC: ‘Jeopardy!’ champ James Holzhauer makes pancreatic cancer donation in Alex Trebek’s name
CBS: “Jeopardy James” Holzhauer donates to pancreatic cancer research to honor Alex Trebek
Fox News: “Jeopardy!’ champ James Holzhauer donates to pancreatic cancer charity walk in Trebek’s honor
CNN: “Jeopardy!” Champion James Holzhauer donated to a cancer walk in Alex Trekek’s name
ABC Chicago:  “Jeopardy! James” Holzhauer donates $1K to Naperville pancreatic cancer research walk
Chicago Tribune: ‘Jeopardy!’ champ James Holzhauer makes donation in Alex Trebek’s name to Naperville pancreatic cancer walk
Yahoo:  ‘Jeopardy!’ champion James Holzhauer donates to pancreatic cancer walk in Alex Trebek’s name
Survivornet: As Alex Trebek continues his journey with pancreatic cancer “Jeoparty James” contributes part of his fortune to finding its cure

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Hope For Pancreatic Cancer Patients

After multiple Emmy award-winning “Jeopardy!” host, Alex Trebek, announced that he had stage 4 pancreatic cancer, the news has drawn attention to the disease and raised questions related to the latest advances in diagnosis and treatment of pancreatic cancer.

Dr. Aaron Sasson, director of the Pancreatic Cancer Center at Stony Brook University and chief of the Surgical Oncology Division, said little has changed when it comes to a doctor’s ability to diagnose the cancer any earlier.

“But we have made improvements in imaging of pancreatic cancer,” he said. “That is, the quality of CT scans and MRIs has improved over the years.”

Kerri Kaplan, president and CEO of the Lustgarten Foundation, said the disease has been “notoriously difficult” to detect and treat. The organization is dedicated to pancreatic cancer research.

“Although great strides are being made to detect pancreatic cancer earlier, this disease has few warning signs and vague symptoms that may range from back pain, fatigue and loss of appetite, amongst others,” she said in an email.

Kaplan added, “Even when there are early signs and symptoms, they may easily be attributed to other illnesses. Because of this, patients are often diagnosed when the cancer is at an advanced stage or has spread to other organs — making them ineligible to undergo surgery, which is the best chance at long-term survival.”

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I love you, Mom:
A Living Tribute

As told by Stacy Waldman Bass

Receive a copy of the e-book

In partnership with the Lustgarten Foundation, donors who contribute $75 or more to the I love you, Mom initiative will receive an e-book version of this book as an acknowledgment of your contribution to this worthy cause and in gratitude of your kindness and support of my project and my mom.  A link to download your copy will be emailed beginning on Mother’s Day.

Donate Now

When I began this project, my hopes for it were somewhat modest, but important.  I shared images from my mother’s life on Facebook — tiny slices of her then almost 74 years as a daughter, a summer camper, a counselor, a student, a wife, a mother, a grandmother, a friend, a teacher, a philanthropist, a passionate theatregoer, and a lover of language (to name only a few). I had hoped to create a living and breathing portrait, one that would both delight and remind my mom of the wonderful life she had lived and the range of people she had impacted and influenced.  I also had hoped that in sharing these images, each day from February 1, 2018—one month after her diagnosis of metastatic pancreatic cancer— until January 13, 2019, the day following her woefully untimely death, I could somehow create and fuel a community of supporters to nurture those memories and to engage my mom in an online conversation that could buoy her spirits and positively occupy her time.  I set out to harness the immediacy, range, and force of social media for good.  And it worked.

There were moments along the way when I began to believe that the swelling force of the movement that formed around her over the year could somehow change the course of her prognosis or, at the very least, extend her time.  I think she believed that, too.  The love and positivity that flooded in her direction, from near and far, from “likes” and “loves” to comments and questions, was so empowering and transformative that maybe, just maybe, it could work.   The digital conversation quickly spilled offline and my mother was supported in ways unimaginable by many she knew and loved and many more that she did not.

I Love You, Mom

When I started the project, my mom asked how long I thought I might do it and in those first terrifying days, I was honestly thinking “for as long as you live”–fearing the accelerated pace of the cancer—but wanting so much to be optimistic, I instead said “for a year.  Let’s start with that.” And in that one instant, a goal was born.  Let’s make it a year.  One year. Please, at least one year.

Every day, my mom woke up looking for “her” post: curious and excited to see what image I’d chosen and what I might write about it; eagerly anticipating the interest and engagement of the community; enthusiastically responsive to questions and comments.  And true to form, while she might call me to gratefully acknowledge a particular post or to clarify my query about a date or time, she also never hesitated to point out an errant typo or mischaracterization which I would then quickly remedy.

This living tribute changed things.  Her thinking shifted. As did mine.  Through the process, and my intense absorption in it, I had the chance to fall in love with my mom anew. I grew to see her as a whole person, a complete and multifaceted woman who was my mother, but also so much more.  It gave me a more refined appreciation for the nuances of her life, the choices she made, the challenges she faced.  I saw strength where before I’d seen only softness.  Layers and layers of lovely that I may have taken for granted, now shone through.

I spent a fair amount of time daydreaming that when she reached that milestone one-year mark, I would make a book of the accumulated posts. It would be a gift for her, a small but beautiful treasure, to have and to hold. I thought that together, we could celebrate the victory of both the medicine and memories and marvel at the extraordinary community that blossomed around her.  That part was not to be.

This story, like far too many stories of cancer, did not have a happy ending.  And though most days still, this plain fact is unbearably and heartbreakingly sad, I nonetheless still found myself wanting or needing to make that book; and to find a way to redirect the gift that was intended for my mom to others who are still fighting, and who could still prevail.  And so, this book, in honor and in memory of my extraordinary mom, Jessica Friedman Waldman, is now a mission and one that I believe is a critical one:  to help fund groundbreaking, life-changing research to defeat cancer, and in particular the pancreatic cancer that took her from us.  In partnership with the Lustgarten Foundation, the leading-edge pancreatic cancer research group, and its collaboration with Stand Up To Cancer, donors to the I love you, Mom initiative will receive an e-book version of this book as an acknowledgment of their contribution to this worthy cause and in gratitude of your kindness and support of my project and my mom.

What follows is a slightly curated version of this almost year-long project.  I hope that in reading it, you will not only learn about my mother or my journey or my loss but that, like so many who followed along, day by day, you will be similarly inspired: to be grateful for and expressive about the relationships in your life—with your own mother, or daughter, or sister or friend; to mindfully nurture and attend to those relationships and to cherish the simplicity and beauty of the everyday.

Every day that you can.

Stacy Pamela Waldman Bass

Learn more about Stacy

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View Some of the Heartfelt Facebook Posts

I love you, Mom Stacy Bass

2.1.18 I love you Mom. ❤

Since the first of the year, we have been trying to digest the sobering news that my spectacular, beautiful, amazing mom has pancreatic cancer. Each new test or procedure has created new obstacles and staggering complexities and with them, growing anxiety, sadness, anger, depression. The feeling of being unable to do anything meaningful to make a difference is excruciating, numbing. Last night, as I lay awake, again in tears, I tried to figure out some positive affirmation that I could do or offer every day— to will her to the other side of this terrifying disease; to inspire her to beat the odds, crush the statistics, to survive and thrive.

And so, I’ve decided that each day, I will share a picture of my mom— to breathe new life into moments past and to celebrate how much she is loved; to build strength and to fortify a community of support, for her. While many of the photos I will share aren’t mine (and the photographer is unknown)—since photography is my meditation, my prayer, my gift and my offering…maybe sharing these images IS what I can do. While medicine does what it can.

Facebook, like all social media, has flaws but one unequivocal strength is connectedness. I am not sharing this to elicit comments or empathy but instead, in hopes that whatever good, whatever power, whatever positivity it puts out into the universe will find its way back to my Mom, and exponentially so. And she will feel that love.

Starting with this favorite……
I love you, Mom.

I Love You, Mom!

3.8.18 I love you Mom ❤

That’s me, learning to ride a bike, with a committee of encouraging fashionistas. So much color and pattern and…. always so much love.

I Love You, Mom!

3.26.18 I love you Mom ❤
There’s something simply amazing about seeing your parents –before they were your parents. Right? This swoonworthy pic really makes me smile.

I Love You, Mom!

3.28.18 I love you Mom ❤ and HAPPY HAPPY 74th BIRTHDAY!
Any pictorial retrospective about you would incomplete without this AMAZING image. I don’t remember when I first saw it….but I remember clearly that it was that moment that I was able to acknowledge that my mom was ALSO this incredible, surprisingly bold, playful, quietly confident and spectacular WOMAN. And it made me both very proud and even a little jealous. Gutsy move. Maybe Dad wasn’t the adventurous one after all.

I Love You, Mom!

5.3.18 I love you Mom ❤
College days. 1964ish. Turning heads all over campus. Loving the dark(er) hair and the sweet but sultry vibe.

I Love You, Mom!

10.31.18 I love you Mom ❤
52 years ago today, you were finishing up 19 hours of labor and so hoping I’d arrive just before Halloween. Alas, I wasn’t in much of a rush and truly, despite countless jokes about “trick or treat” or wearing my “birthday suit” to a costume party, having a birthday on Halloween has been mostly an embarrassment of riches — presents, candy and cake all in one delirious sugar-soaked day. I confess it’s not the happiest birthday for me today— focused instead on your health and supporting you in every way I can. Nonetheless, I am ever grateful for that hard work you did all of those years ago, and every day since to be the very BEST mom this little pumpkin could ever ask for.

I Love You, Mom!

11.1.18 I love you Mom ❤
And love how you “showed up” for all of us yesterday — with such strength and such spirit. Highlight of my birthday was seeing you like this — bright, beautiful and buoyant. Not giving up. Not broken by this cancer. THAT, and the perfectly executed version of Granny’s Mac and Cheese, a visit from Michael and so many astoundingly loving and kind messages, cards and gifts made it a small but nonetheless happy birthday. No cake but lots of wishes…

I Love You, Mom!

12.2.18 I love you Mom ❤

After seeing Green Book last night, impossible to resist sharing more images from that unforgettable 1960 night — when you won a date with pop legend Bobby Darin at the Copacabana. What a lucky guy to spend the evening with 16-year old YOU. I wish I could have been there, too.

Related Topics

Learn more about how to cope with pancreatic cancer.
Important information for caregivers.
Learn more about addressing end of life care.
Learn more about early detection.

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New Chief Medical Advisor

Internationally Renowned Cancer Immunologist Elizabeth M. Jaffee, M.D. Joins the Lustgarten Foundation

The Lustgarten Foundation announced today the appointment of Elizabeth M. Jaffee, M.D., the immediate past president of the American Association for Cancer Research (AACR), as its new Chief Medical Advisor. Dr. Jaffee is an internationally recognized expert in cancer immunology, with specific expertise in preclinical and early clinical development of immunotherapies for pancreatic cancer.

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Funding Artificial Intelligence Research

New Tools For Detecting and Treating Pancreatic Cancer

The Pancreatic Cancer Collective, the strategic partnership of Lustgarten Foundation and Stand Up To Cancer (SU2C) is funding two new million-dollar grants for computational approaches to identifying high-risk pancreatic cancer populations. The grant money will be used to develop new ways of identifying people who are at high risk for developing pancreatic cancer that will be based on their health records.

Artificial intelligence (AI) is a term that refers to machines that are programmed to mimic human reasoning. The goal of AI is to learn from failure and be able to provide the best recommendation for a specific subject. Whether it be solving equations, finding the best treatment options for cancer patients, or aiding in vehicle autonomy, AI is becoming a powerful resource across multiple industries.

“From diagnosing pancreatic cancer to determining which treatment approach may be best for each patient, we believe the field of AI holds great promise for patients and their families,” stated David A. Tuveson, MD, PhD, Lustgarten’s chief scientist, director of the Cancer Center at Cold Spring Harbor Laboratory and co-scientific leader of the Collective.

The two teams will each pursue a different approach to identifying individuals in the general population who are at high risk for pancreatic cancer. One will use molecular and genetic data taken from a variety of datasets to identify new and accessible ways to identify high-risk individuals. The other focuses on identification of high-risk individuals by applying machine learning analysis to real world data comprising radiological images, electronic medical records, and information collected by physicians. Each team will receive up to $1 million over two years.

Related Topics:

Learn more about the Pancreatic Cancer Collective
Find a screening program 

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New Therapies Challenge Grant

 

Lustgarten Foundation and Stand Up To Cancer, strategic partners in the Pancreatic Cancer Collective, offer comments on research published today in the journal Nature Medicine which describes a new therapeutic approach with promise for patients with pancreatic cancer. These researchers discovered a combination drug therapy that may effectively combat the disease. Based on this research, Martin McMahon, PhD, a cancer researcher at Huntsman Cancer Institute and professor of Dermatology at the University of Utah has received a Pancreatic Cancer Collective New Therapies Challenge Grant.

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Pancreatic Cancer News


Yale scientists help immune system find hidden cancer cells

14. 10. 19 ladmin

Cancer cells are masters at avoiding detection, but a new system developed by Yale scientists can make them stand out from the crowd and help the immune system spot and eliminate tumors that other forms of immunotherapies might miss, the researchers report Oct. 14 in the journal Nature Immunology. The new system reduced or eliminated […]

Rafael Pharmaceuticals Reaches Milestone of 100 Patients Enrolled in Pivotal Phase 3 Trial (AVENGER 500) of CPI-613®️ (devimistat) for Patients with Metastatic Pancreatic Cancer

8. 10. 19 ladmin

 Rafael Pharmaceuticals, Inc. (“Rafael” or the “Company”), a leader in the growing field of cancer metabolism-based therapeutics, today announced that it has enrolled 100 patients in its pivotal Phase 3 clinical trial for metastatic pancreatic cancer (AVENGER 500). The multicenter, open-label, randomized trial is evaluating the efficacy and safety of Rafael’s lead compound CPI-613®️ (devimistat) in […]

Study: Innovative pancreatic cancer treatment may rev up immune system

8. 10. 19 ladmin

A University of Rochester Wilmot Cancer Institute research team reports that combining a type of radiation therapy with immunotherapy not only cures pancreatic cancer in mice, but appears to reprogram the immune system to create an “immune memory” in the same way that a vaccine keeps the flu away. The result is that the combination […]

Cancer Is Still Beating Us—We Need a New Start

4. 10. 19 ladmin

I have been studying and treating cancer for 35 years, and here’s what I know about the progress made in that time: There has been far less than it appears. Despite some advances, the treatments for most kinds of cancer continue to be too painful, too damaging, too expensive and too ineffective. The same three […]

Response rate to albumin-bound paclitaxel plus gemcitabine plus cisplatin treatment among patients with advanced pancreatic cancer: A phase 1b/2 pilot clinical tria

3. 10. 19 ladmin

 Adding a drug that targets a molecular vulnerability in pancreatic cancer could provide substantial benefit to patients, according to a clinical trial study by the HonorHealth Research Institute and the Translational Genomics Research Institute (TGen), an affiliate of City of Hope, in conjunction with the Pancreatic Cancer Research Team and Cancer Research And Biostatistics. Published […]

Drug Trio Improves Odds Against Advanced Pancreatic Cancer

3. 10. 19 ladmin

A three-drug chemo cocktail appears to shrink tumors and improve survivorship among pancreatic cancer patients, a new, small study shows. Tumors substantially shrank for just over 71% of patients treated with a three-drug regimen of nab-paclitaxel, gemcitabine and platinum-based cisplatin, the researchers found. Further, 16 patients (64%) out of the 25 treated were still alive […]

Fungal Invasion of Pancreas Creates Cancer Risk

2. 10. 19 ladmin

Certain fungi move from the gut to the pancreas, expand their population more than a thousand-fold, and encourage pancreatic cancer growth, a new study finds. Published online in Nature October 2, the study is the first to offer strong evidence that the mycobiome—the local mix of fungal species in the pancreas—can trigger changes that turn normal cells into pancreatic […]

Why Can’t We Stop Pancreatic Cancer?

23. 9. 19 ladmin

Pancreatic cancer, which will be diagnosed in about 56,770 people in the United States this year, is the only cancer with a rising mortality rate through 2014, although five-year survival has begun to inch up, from 8 percent to 9 percent by 2016. It remains the nation’s third leading cause of cancer deaths, after cancers […]

A compound may improve pancreatic cancer survival rate, scientists find

19. 9. 19 ladmin

Scientists have discovered a compound could help slow down pancreatic cancer by targeting proteins that promote metastatic cells. Researchers at Johns Hopkins Medicine found that the compound, 4-HAP, reduced tumors in mice and could improve survival for pancreatic cancer patients. According to the National Cancer Institute, 73,554 people in the U.S. have pancreatic cancer and […]

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