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GENetic Education, Risk Assessment

Genetics play a role in up to 10 percent of pancreatic cancer cases. However, family members of pancreatic cancer patients often are not aware that certain genetic mutations can be passed down, which is why having information about genetic risk is so important. The GENERATE (GENetic Education, Risk Assessment, and TEsting) Study is designed for people who have a close relative with pancreatic cancer that was caused by an inherited mutation in a gene. The goal of this study, which will enroll up to 1,000 participants, is to improve genetic testing and cancer prevention in family members of pancreatic cancer patients with identifi ed mutations.

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Double Your Impact

Gifts made by Midnight on December 31, 2019 will be matched dollar for dollar!

Clinical trials are critical to scientific breakthroughs and hold the promise of increasing patients’ quality of life, improving outcomes, and giving patients and their families more time together. Lustgarten-funded trials could one day lead to new treatment options and a potential cure for patients like Charlie, a patient who has undergone surgery and other treatments.

 

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#GivingTuesday
Double Your Donation!

Imagine a world with a cure for pancreatic cancer.

Now imagine you have the power to make that dream a reality — because you do!
Thanks to a generous $175,000 match, it’s easier than ever to make a difference on #GIVINGTUESDAY.

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Holiday
Rock & Roll Bash

Join us on Decemer 3rd for a night of holiday fun – dancing, delicious food and drinks, and an exclusive performance by the world-famous Radio City Rockettes.

The Madison Square Garden Company and AMC Networks host the Holiday Rock & Roll Bash to benefit the Lustgarten Foundation. To date, this fabulous event has raised more than $24 million for pancreatic cancer research.

The Lustgarten Foundation is America’s largest private foundation dedicated to funding pancreatic cancer research. Based in Woodbury, NY, the Foundation supports research to find a cure for pancreatic cancer.

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Navigating Pancreatic Cancer

A Guide for Patients & Caregivers

Receive Your Free Copy

Patients and caregivers can also request a free hard copy of this book at contactus@lustgarten.org.  Please write book request in the subject line and provide your name, mailing address, telephone number and email address.

Download a free copy of Navigating Pancreatic Cancer: A Guide for Patients and Caregivers

Download Your Copy Now

Our updated Navigating Pancreatic Cancer: A Guide for Patients & Caregivers handbook is here! Thanks to an educational grant from Celgene and support from Ipsen Pharmaceuticals, this handbook is a valuable resource and roadmap for patients and caregivers faced with a pancreatic cancer diagnosis. Part One addresses immediate needs, including a checklist for newly diagnosed patients; guidance on making treatment decisions; surgery; drug treatments; clinical trials; use of complementary and alternative methods; supportive care; coping; and caring for a loved one.

Part 2 offers background information about the disease and its causes, signs and symptoms, and diagnosis.

We hope this guide will empower patients and caregivers to ask bold questions, seek out cutting-edge treatments, and confront the unique challenges of pancreatic cancer head-on, armed with all of the knowledge needed to make informed decisions.

Bulk orders are available to professionals only. For additional copies to share with colleagues or patients, please fill in our book order form. The books are free, but we do charge $20 per carton of books for shipping and handling. Each carton contains 40 books.

At Lustgarten, we are making progress every day in our fight against pancreatic cancer. Our commitment to everyone impacted by pancreatic cancer has never been stronger, and we will continue to fund research until a cure is found. We believe it’s no longer a matter of “if” we are going to conquer this disease. It’s a matter of when.

Download Your Copy Now

Related Topics

View our blog series.
Learn how you can get involved.
Find an event in your community.

 

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Nearly $1 Million Raised for Research!

Thank You, Long Island!

Our Long Island Walk was a huge success, and we are incredibly grateful to our presenting sponsor, Northwell Health, and all of the walkers, team members, researchers, volunteers, speakers and other sponsors who shared this day of hope with us. Because of your support, we had one of our largest crowds to date, welcoming 7,000 participants, including many walkers who have been with us since our first walk in 2001 and family members who have lost loved ones to this disease but who are more committed than ever to joining us on our journey toward a cure.

2019 Long Island Walk Charles F. Dolan

We are honored that our founder, Charles Dolan, addressed the crowd with his heartfelt speech about how proud Marc Lustgarten would be to witness the breakthroughs made in treating and detecting this disease. The most inspiring part of the walk was seeing the more than 20 survivors who participated in our ribbon-cutting ceremony. They shared their stories, celebrated with their families, and served as a powerful example of how much progress we are making through research.

Thanks to your generosity, we are well on our way toward our $1 million goal. We encourage you to continue fundraising, as your page will stay open through the rest of the year. We look forward to seeing you at the Long Island Walk’s 20th anniversary next fall!

View all walk photos.

 

Related Topics:

Watch News12’s report on the walk.
Read Newsday’s article about the walk.

 

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Jeopardy! The Greatest Of All Time

Who is the greatest Jeopardy! contestant of all time?

Answer: Tune in Tuesday, January 14th as the tournament continues!

Watch (and play along!) as Ken Jennings, Brad Rutter, and James Holzhauer (aka ‘Jeopardy James’) compete for the #JeopardyGOAT title in the “Greatest of All Time” tournament. The first contestant to win three matches will go down in history as the #JeopardyGOAT.

You can cheer your favorite contestant on or start your own #JeopardyGOAT tournament from the comfort of your own home. Invite friends and family over for a viewing party and challenge them to participate in a virtual tournament. For each correct answer, support the Lustgarten Foundation by donating $1, or another amount of your choosing, to pancreatic cancer research. Whether it’s $10, $100, or $1,000, every dollar makes a difference and 100% of every donation goes directly to pancreatic cancer research.

What is #WeLoveYouAlex?

Even though the Jeopardy! Tournament of Champions has ended, please continue to join the tournament competitors – including “Jeopardy! James” Holzhauer, Dhruv Gaur and Steven Grade – in honoring Alex Trebek and the entire pancreatic cancer community by donating to research. Now through December 31, donate to our #WeLoveYouAlex campaign to increase awareness and funding for pancreatic cancer research.

If you missed it, Dhruv Gaur was the contestant and college champion who answered “We Love You, Alex” during the recent Jeopardy! Tournament of Champions. This answer choked up the beloved game show host and earned Dhruv a seat at The Ellen DeGeneres Show, where he was presented with a $25,000 check from Shutterfly for the Lustgarten Foundation.

As the season of giving approaches, we hope you will join the movement to fund pancreatic cancer research. As Mr. Trebek said when he was first diagnosed, “Keep the faith and we’ll win. We’ll get it done.” With your support, we will definitely be able to “get it done” – by funding more research, we are moving closer to finding a cure.

We WELCOME you to our community and THANK YOU for your life-changing support!

Play Along to Support Research!

We Love You Alex

Join with Jeopardy! fans who are committed to raising awareness and funding for pancreatic cancer research! During the Jeopardy! Tournament of Champions episodes airing on November 14-15, viewers are encouraged to donate $1 to the Lustgarten Foundation for each answer they guess correctly. And, thanks to separate funding to support administrative expenses, 100% of your donation goes directly to pancreatic cancer research.

Jeopardy! champion Steven Grade organized this play-along game in honor of host Alex Trebek and in memory of Larry Martin, a Jeopardy! Teachers Tournament champion who passed away from pancreatic cancer earlier this year.

Grade tweeted, “Play one night, play both nights, donate an amount that is right for you, or help spread the word to Jeopardy! watchers and non-watchers alike–every little bit helps, and every little bit helps to honor Alex, Larry, and all those who are fighting and have fought pancreatic cancer.” Donate Now.

Alex Trebek Lends His Voice To Pancreatic Cancer Awareness Month

We are grateful that Jeopardy! host Alex Trebek has shared his story and helped to raise global awareness for pancreatic cancer and Pancreatic Cancer Awareness Month with his PSA for the World Pancreatic Cancer Coalition. Join us throughout the month of November as we unveil our new #PutTheUinCURE social media campaign and encourage you to get involved, and as we highlight the need for continued research, more effective treatments, and methods to help diagnose this disease at an earlier stage.

Get Involved During Awareness Month

“Keep the faith and we’ll win.” — Alex Trebek

Alext Trebek Jeopardy host

On March 6th, television icon Alex Trebek, who has hosted Jeopardy, America’s Favorite Quiz Show®, since 1984, announced that he was diagnosed with Stage IV pancreatic cancer in a video posted to the show’s official YouTube account. On behalf of our community of patients, caregivers, researchers, loved ones and survivors all impacted by this disease, we are sending Mr. Trebek our thoughts and best wishes for his treatment and recovery.

Mr. Trebek joins more than 56,000 other Americans who will be diagnosed this year. Pancreatic cancer is often called a silent disease because many times no signs or symptoms are noticed until the cancer is in an advanced stage, when surgery is typically not an option and effective treatments are limited.

Mr. Trebek is not letting this prognosis discourage him from fighting. As he shares in his video message, “I plan to beat the low survival rate statistics for this disease…Keep the faith and we’ll win. We’ll get it done.”

At the Lustgarten Foundation, we are relentlessly focused on “getting it done.” Pancreatic cancer research is moving faster than ever before, and there has never been a more hopeful time for patients. The researchers we fund are committed to identifying new treatments and tailoring therapy to each patient. We are dedicated to changing patients’ lives and making sure that many more patients become long-term survivors.

Today and every day, we stand with Mr. Trebek, his loved ones and fans, and the thousands of other patients courageously fighting this disease and inspiring us to support even more research. Please know we are with you as you navigate through this disease, and we will not quit until a cure is found.

 

Related Topics:

Find the help you need through these resources.
Read about the research we are funding in drug development.
Learn more about our mission and milestones.

Related Media:

KWWL.com:  Pancreatic Cancer Remission Rates Remain Low
Boston25 News:  Dana-Farber Pancreatic Cancer Specialist Talks Symptoms, Treatments for Disease
News12:  Longtime ‘Jeopardy’ Host Alex Trebek Announces Stage 4 Pancreatic Cancer Diagnosis
PIX 11:  Fight for Survival

Get Involved During Awareness Month Survivor Stories

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Possible drug target for pancreatitis

Pancreatitis is an inflammation of the pancreas that accounts for 275,000 hospitalizations in the United States annually. Patients who suffer from hereditary pancreatitis have a 40 to 50 percent lifetime risk of developing pancreatic cancer. Dannielle Engle, a former Cold Spring Harbor Laboratory (CSHL) Cancer Center postdoctoral fellow who was recently appointed Assistant Professor at Salk Institute, studies the progression of pancreatitis to pancreatic cancer. She has focused on a potentially powerful biomarker, a chemical structure created by complex sugar molecules called CA19-9, since CA19-9 is elevated in patients with pancreatitis and pancreatic cancer.

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Tune in with
“Jeopardy! James”

Join “Jeopardy! James” in the Fight

Tune in tonight, Monday, September 9th, as the 36th season of Jeopardy! kicks off. We will be watching and look forward to cheering on the iconic game show host Alex Trebek on as he reprises his role for this upcoming season after his pancreatic cancer diagnosis five months ago and subsequent treatment.

In a recent article, Trebek promised viewers an entertaining season ahead. “We’ve got some exciting things coming up, and I can’t wait to share them with all of you,” said Trebek in the article. “Let me tell you, it’s going to be a good year.”

Even Jeopardy! James, James Holzhauer, who won an impressive 32-straight games on the show, will be tuning in to wish his friend well. Watch the short video he shared ahead of the show’s premiere below.

Trebek’s courageous fight is giving hope to thousands of patients and their families who have been affected by this disease. Join us and Jeopardy! James tonight as Jeopardy! returns.

In honor of Trebek and everyone else impacted by pancreatic cancer, please consider donating $36 for season 36. 100% of your donation goes directly to research leading toward a cure.

Follow the Lead of “Jeopardy! James”

Naperville Walk Team

We all watched in disbelief as Alex Trebek shared in March that he was suffering from Stage IV pancreatic cancer. This news hit Naperville, IL Walk leader Ann Zediker especially hard, as she lost her own father to the disease in 2010, just five months after he was diagnosed. She watched a man who loved life deteriorate during treatment. Now, Ann is fighting for continued research and a cure.

This year, Jeopardy! champion James Holzhauer, who won an impressive 32-straight games, caught her attention. After seeing him on the show, she learned that he was born and raised in Naperville, and she invited him to attend this year’s walk on Saturday, July 14th. While he couldn’t attend, he has added his support to the Naperville Walk in honor of Alex Trebek and all the other survivors. His generous donation of $1,109.14 represents his daughter’s birthday (November 9, 2014).

We encourage you to follow James’ example and donate amounts corresponding to your birthday, in honor or in memory of a loved one, or in support of Alex Trebek.

Your contribution will make a difference in detecting the disease earlier, developing better treatments and eventually finding a cure! And, thanks to separate funding to support administrative expenses, 100% of your donation goes directly to pancreatic cancer research.

Register Donate

 

Related Media:

Chicago Tribune:  James Holzhauer to make his prime-time debut Tuesday in battle to be greatest ‘Jeopardy!’ player of all time
NBC: ‘Jeopardy!’ champ James Holzhauer makes pancreatic cancer donation in Alex Trebek’s name
CBS: “Jeopardy James” Holzhauer donates to pancreatic cancer research to honor Alex Trebek
Fox News: “Jeopardy!’ champ James Holzhauer donates to pancreatic cancer charity walk in Trebek’s honor
CNN: “Jeopardy!” Champion James Holzhauer donated to a cancer walk in Alex Trekek’s name
ABC Chicago:  “Jeopardy! James” Holzhauer donates $1K to Naperville pancreatic cancer research walk
Chicago Tribune: ‘Jeopardy!’ champ James Holzhauer makes donation in Alex Trebek’s name to Naperville pancreatic cancer walk
Yahoo:  ‘Jeopardy!’ champion James Holzhauer donates to pancreatic cancer walk in Alex Trebek’s name
Survivornet: As Alex Trebek continues his journey with pancreatic cancer “Jeoparty James” contributes part of his fortune to finding its cure

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Hope For Pancreatic Cancer Patients

After multiple Emmy award-winning “Jeopardy!” host, Alex Trebek, announced that he had stage 4 pancreatic cancer, the news has drawn attention to the disease and raised questions related to the latest advances in diagnosis and treatment of pancreatic cancer.

Dr. Aaron Sasson, director of the Pancreatic Cancer Center at Stony Brook University and chief of the Surgical Oncology Division, said little has changed when it comes to a doctor’s ability to diagnose the cancer any earlier.

“But we have made improvements in imaging of pancreatic cancer,” he said. “That is, the quality of CT scans and MRIs has improved over the years.”

Kerri Kaplan, president and CEO of the Lustgarten Foundation, said the disease has been “notoriously difficult” to detect and treat. The organization is dedicated to pancreatic cancer research.

“Although great strides are being made to detect pancreatic cancer earlier, this disease has few warning signs and vague symptoms that may range from back pain, fatigue and loss of appetite, amongst others,” she said in an email.

Kaplan added, “Even when there are early signs and symptoms, they may easily be attributed to other illnesses. Because of this, patients are often diagnosed when the cancer is at an advanced stage or has spread to other organs — making them ineligible to undergo surgery, which is the best chance at long-term survival.”

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Pancreatic Cancer News


Unique Toronto-based clinical trial reveals new subtypes of advanced pancreatic cancer

13. 1. 20 ladmin

Researchers identify five subtypes of pancreatic cancer, uncovering new opportunities for targeted treatment of the aggressive disease. Researchers at the Ontario Institute for Cancer Research (OICR) and the University Health Network (UHN) have discovered detailed new information about the subtypes of pancreatic cancer. A better understanding of the disease groups may lead to new treatment […]

U-M Team Sheds New Light on the Role of Regulatory T Cells in Pancreatic Cancer

10. 1. 20 ladmin

In mouse models, the work uncovers a new potential target to improve immunotherapy approaches to the deadly disease. A multidisciplinary Michigan Medicine team is shedding new light on the role of regulatory T cells in pancreatic cancer — and, in mouse models, have uncovered a new potential target to improve immunotherapy approaches to the deadly […]

Pancreatic Cancer Cells Secrete Signal that Sabotages Immune Attack on Tumors

8. 1. 20 ladmin

A key immune signal has a previously unknown role in turning off the immune system’s attack on pancreatic cancer cells, a new study finds. Led by researchers at NYU Grossman School of Medicine, the study found that an immune signaling protein, interleukin-1β (IL-1β), is made and released by pancreatic tumor cells. This was shown to […]

New Procedure Saves Lives Through Early Pancreatic Cancer Detection

6. 1. 20 ladmin

Overall cancer survival has dramatically improved over the past two decades. However, the prognosis for pancreatic cancer remains bleak, with five-year survival at just 9 percent. Patients usually don’t have symptoms until the cancer is advanced, making early diagnosis and treatment a challenge. Now, a study by researchers at The Ohio State University Wexner Medical […]

John Lewis likely to stay in D.C. for treatment of pancreatic cancer

31. 12. 19 ladmin

U.S. Rep. John Lewis is expected to remain in Washington to receive treatment for stage 4 pancreatic cancer, a diagnosis he announced Sunday. That treatment, according to medical experts, is likely to focus on preventing the disease from spreading further and inhibiting symptoms from growing worse. Dr. Bassel El-Rayes is an oncologist and clinical researcher […]

Lynparza approved in the US as a 1st-line maintenance treatment of germline BRCA-mutated metastatic pancreatic cancer

30. 12. 19 ladmin

Lynparza reduced the risk of disease progression or death by 47% in patients whose disease had not progressed on at least 16 weeks of a 1st-line platinum-based chemotherapy regimen Only PARP inhibitor approved in germline BRCA-mutatedmetastatic pancreatic cancer AstraZeneca and MSD Inc., Kenilworth, N.J., US (MSD: known as Merck & Co., Inc. inside the US […]

AstraZeneca Says FDA Panel Backs Lynparza Use For Pancreatic Cancer

17. 12. 19 ladmin

AstraZeneca and Merck & Co., said that the US Food and Drug Administration Oncologic Drugs Advisory Committee voted 7 to 5 to recommend Lynparza or olaparib as a 1st-line maintenance monotherapy for patients with germline BRCA-mutated metastatic adenocarcinoma of the pancreas (pancreatic cancer), whose disease has not progressed following 1st-line platinum-based chemotherapy. In August 2019, […]

The 19 Biggest Medical Advances of 2019

2. 12. 19 ladmin

When it comes to medical advances, what we’ve seen in 2019 might seem like it’s straight out of science fiction. A synthetic skin that allows robots to “feel”? Medicine tailored to match your individual genes? Pill boxes smart enough to keep tabs on whether or not you’re taking your medication?

“Extraordinary responders” could hold clues to helping others with pancreatic cancer

26. 11. 19 ladmin

It’s estimated that more than 56,000 Americans will be diagnosed with pancreatic cancer this year and nearly 46,000 will die from it. Supreme Court Justice Ruth Bader Ginsburg and “Jeopardy!” host Alex Trebek are two well-known patients who have fought it. But a group of patients, who are not celebrities, could help change the future of treatment for others. […]

ERYTECH Announces Publication of its Phase 2b Trial of Eryaspase in Metastatic Pancreatic Cancer in the European Journal of Cancer

25. 11. 19 ladmin

ERYTECH Pharma (Nasdaq and Euronext: ERYP), a clinical-stage biopharmaceutical company developing innovative therapies by encapsulating therapeutic drug substances inside red blood cells, today announced that the full results from its Phase 2b trial evaluating eryaspase in metastatic pancreatic cancer are now published online in the European Journal of Cancer. The Phase 2b trial evaluated eryaspase, L-asparaginase encapsulated in […]

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