Navigating Pancreatic Cancer
We are here to empower you to ask bold questions, seek out the best treatment options, and face the unique challenges of pancreatic cancer head-on. We want to give you the resources and information you need to make informed decisions that are best for you.
As overwhelming as a pancreatic cancer diagnosis is, it is important to act quickly and put a treatment plan into place. Treatment should ideally begin within one month after you receive your diagnosis. Understand your disease. Thoroughly understand what stage of pancreatic cancer you have and inquire about having your blood and tumor genetically sequenced. […]
If you have been diagnosed with pancreatic cancer, a clinical trial may be your best treatment option. Many clinical trials are underway for patients in all stages of the disease and may involve new combinations of currently available drugs or new drugs that have worked in other cancers. No matter where you are in your journey, we encourage you to learn more about clinical trials.
LET’S WIN! Pancreatic Cancer A Dynamic Way to Share Information Recognizing that there is an urgent need for patients to communicate amongst themselves and with the medical community about potentially life-changing treatments and clinical trials, we are proud to be affiliated with Let’s Win. Let’s Win is an interactive online community where patients and families […]
Pancreatic Cancer Connections is online social community that provides a safe space for pancreatic cancer patients and their loved ones to share their experiences, get valuable coping resources, and support one another. Patients interact with others who are facing a pancreatic cancer and can post questions to the board or message other members privately. This community forum is a valuable resource for patients, caregivers, and their loved ones to refer to at various stages of their treatment and recovery.
Patients and loved ones can sign up for Pancreatic Cancer Connections at no cost and will be welcomed into an engaging and supportive community to discuss topics including treatment options, nutrition, and coping with the disease. Pancreatic Cancer Connections is hosted by Inspire, a leading healthcare social network that connects more than 1,000,000 patients and caregivers.
HOPE From Home
Pancreatic cancer can’t wait—and neither can we.
It’s safe to assume the COVID-19 pandemic has had a dramatic effect on everyone. Almost overnight, we’ve all had to make dramatic transitions to cope with this new reality and to protect ourselves and our communities. Added to that are the very real concerns about the impact COVID-19 will have on those battling pancreatic cancer. We’ve heard from many of you who want to remain engaged with and to help the pancreatic cancer community, so we’ve launched a new opportunity for you to provide the entire Lustgarten family with a little bit of HOPE
“HOPE From Home” is designed to provide you, our valued supporters, a variety of opportunities to support our mission even while social distancing at home. Your participation can help us raise critical funds for pancreatic cancer research and awareness about this dreaded disease. You can show your neighborhood, community and on-line network that pancreatic cancer can’t wait—and neither can we.
Our Response to COVID-19
How Lustgarten is Responding to COVID-19
A letter from the CEO
Hi and thank you for checking in with the Lustgarten Foundation to learn more about our response to the novel coronavirus, or COVID-19.
Seemingly overnight, COVID-19 has dramatically changed the world in which we live. I sincerely hope you and your loved ones are well.
We at the Lustgarten Foundation are doing our best to follow the CDC guidelines, practice social distancing and to help flatten the curve. As of Tuesday, March 17, all staff are working remotely, but we are staying in touch with one another and continue to be here for you. Though images from major cities and small towns across the country almost make it feel that life has stopped, we know the fight against pancreatic cancer cannot wait.
For now, we have postponed or cancelled all events through the end of May—if you were already registered for one of these events, you should have received an email with everything you need to know. If you missed the email or are just now considering registering for an event, we’ve posted all the details below. Of course, if you have questions about pancreatic cancer, fundraising, walks or anything else, please get in touch. Call us tollfree at 866-789-1000 or send an email to email@example.com. We check the messages daily and one of us will get back to you as soon as possible.
To keep up with the latest pancreatic cancer research information and Lustgarten Foundation activities, follow us on Facebook, Instagram, LinkedIn and Twitter.
We know this is a difficult and uncertain time, and we also know we will get through this together. Please follow the recommendations of your healthcare provider and practice social distancing as much as possible (but remember, Skype and FaceTime are great options to keep you connected with friends and family) and stay healthy and safe.
President and CEO
Navigating Pancreatic Cancer
A Guide for Patients & Caregivers
Receive Your Free Copy
Patients and caregivers can also request a free hard copy of this book at firstname.lastname@example.org. Please write book request in the subject line and provide your name, mailing address, telephone number and email address.
Download a free copy of Navigating Pancreatic Cancer: A Guide for Patients and Caregivers
Our updated Navigating Pancreatic Cancer: A Guide for Patients & Caregivers handbook is here! Thanks to an educational grant from Celgene and support from Ipsen Pharmaceuticals, this handbook is a valuable resource and roadmap for patients and caregivers faced with a pancreatic cancer diagnosis. Part One addresses immediate needs, including a checklist for newly diagnosed patients; guidance on making treatment decisions; surgery; drug treatments; clinical trials; use of complementary and alternative methods; supportive care; coping; and caring for a loved one.
We hope this guide will empower patients and caregivers to ask bold questions, seek out cutting-edge treatments, and confront the unique challenges of pancreatic cancer head-on, armed with all of the knowledge needed to make informed decisions.
Bulk orders are available to professionals only. For additional copies to share with colleagues or patients, please fill in our book order form. The books are free, but we do charge $20 per carton of books for shipping and handling. Each carton contains 40 books.
At Lustgarten, we are making progress every day in our fight against pancreatic cancer. Our commitment to everyone impacted by pancreatic cancer has never been stronger, and we will continue to fund research until a cure is found. We believe it’s no longer a matter of “if” we are going to conquer this disease. It’s a matter of when.Download Your Copy Now
Pancreatic Cancer NewsView All Articles
A new study from Columbia University Irving Medical Center and the Herbert Irving Comprehensive Cancer Center suggests a compound in development for a rare kidney stone disease may have potential against pancreatic cancer. The compound starves tumors of an amino acid, cysteine, which was found to be critical to the survival of pancreatic cancer cells. […]
Pancreatic cancer is one of the most challenging cancers to treat. In part, that’s because pancreatic tumors tend to be surrounded by scar tissue. This dense layer prevents cancer medicines and cancer-fighting immune cells from penetrating to the interior. A new study from Scott Lowe’s lab in the Sloan Kettering Institute, published March 31 in the journal Cell, provides evidence that […]
The pancreas is one of the hardest-working organs in our body. It’s a power-house for fueling your body, keeping your blood sugar in balance, but also helping in digesting food. But it’s one even experts don’t understand completely. And there’s one problem that’s especially misunderstood. Sometimes, during abdominal scans for other reasons, doctors discover cysts […]
System uses machine learning to offer new way to screen for hard-to-detect cancers. A new blood test that can detect more than 50 types of cancer has been revealed by researchers in the latest study to offer hope for early detection. The test is based on DNA that is shed by tumours and found circulating […]
Dr. Matthew Weiss is one of the nation’s leading surgical oncologists, specializing in surgery for liver and pancreatic cancer, and benign hepatopancreatobiliary diseases, with specific expertise in minimally-invasive approaches. Read our insightful Q&A with Dr. Matthew Weiss. What role does surgery play in the treatment of pancreatic cancer, and why is surgery so important? Surgery […]
What does artificial intelligence (AI) have to do with helping doctors detect pancreatic cancer at an earlier stage? As it turns out, a lot. AI refers to machines programmed to mimic human reasoning with the goal of learning from failure and providing the best recommendation for a specific subject. In the case of pancreatic cancer, […]
Increases in the proportion of patients diagnosed with pancreatic cancer at an earlier stage and younger age may be due to improvements in early detection and diagnosis, according to study results published in Journal of National Cancer Institute. “This research was prompted by our own experience undertaking pancreatic screening,” Michael Goggins, MD, professor of pathology, medicine and oncology at […]
OncoSil Medical Ltd (ASX:OSL) today announced that the OncoSilTM device has reached a significant milestone, receiving Breakthrough Device Designation by the US Food and Drug Administration (FDA) for the treatment of unresectable locally advanced pancreatic cancer in combination with systemic chemotherapy. OncoSilTM is a targeted radioactive isotope (Phosphorus-32) that’s implanted directly into a patient’s pancreatic […]
Pancreatic cancer isn’t as common as some other cancers, but it is somewhat renowned for being difficult to treat. Symptoms usually don’t show up until the cancer has grown to an advanced stage, but now, more than ever, patients with pancreatic cancer have good reason to be optimistic about their futures due to advances researchers […]
In experiments with mice, researchers at the Johns Hopkins Kimmel Cancer Center say they have slowed the growth of transplanted human prostate and pancreatic cancer cells by introducing bone marrow cells with a specific gene deletion to induce a novel immune response. The results, described January 2020 in the Journal for ImmunoTherapy of Cancer, suggest that the technique […]