Navigating Pancreatic Cancer
We are here to empower you to ask bold questions, seek out the best treatment options, and face the unique challenges of pancreatic cancer head-on. We want to give you the resources and information you need to make informed decisions that are best for you.
As overwhelming as a pancreatic cancer diagnosis is, it is important to act quickly and put a treatment plan into place. Treatment should ideally begin within one month after you receive your diagnosis. Understand your disease. Thoroughly understand what stage of pancreatic cancer you have and inquire about having your blood and tumor genetically sequenced. […]
If you have been diagnosed with pancreatic cancer, a clinical trial may be your best treatment option. Many clinical trials are underway for patients in all stages of the disease and may involve new combinations of currently available drugs or new drugs that have worked in other cancers. No matter where you are in your journey, we encourage you to learn more about clinical trials.
LET’S WIN! Pancreatic Cancer A Dynamic Way to Share Information Recognizing that there is an urgent need for patients to communicate amongst themselves and with the medical community about potentially life-changing treatments and clinical trials, we are proud to be affiliated with Let’s Win. Let’s Win is an interactive online community where patients and families […]
Pancreatic Cancer Connections is online social community that provides a safe space for pancreatic cancer patients and their loved ones to share their experiences, get valuable coping resources, and support one another. Patients interact with others who are facing a pancreatic cancer and can post questions to the board or message other members privately. This community forum is a valuable resource for patients, caregivers, and their loved ones to refer to at various stages of their treatment and recovery.
Patients and loved ones can sign up for Pancreatic Cancer Connections at no cost and will be welcomed into an engaging and supportive community to discuss topics including treatment options, nutrition, and coping with the disease. Pancreatic Cancer Connections is hosted by Inspire, a leading healthcare social network that connects more than 1,000,000 patients and caregivers.
Double Your Impact
Gifts made by Midnight on December 31, 2019 will be matched dollar for dollar!
Clinical trials are critical to scientific breakthroughs and hold the promise of increasing patients’ quality of life, improving outcomes, and giving patients and their families more time together. Lustgarten-funded trials could one day lead to new treatment options and a potential cure for patients like Charlie, a patient who has undergone surgery and other treatments.
Navigating Pancreatic Cancer
A Guide for Patients & Caregivers
Receive Your Free Copy
Patients and caregivers can also request a free hard copy of this book at firstname.lastname@example.org. Please write book request in the subject line and provide your name, mailing address, telephone number and email address.
Download a free copy of Navigating Pancreatic Cancer: A Guide for Patients and Caregivers
Our updated Navigating Pancreatic Cancer: A Guide for Patients & Caregivers handbook is here! Thanks to an educational grant from Celgene and support from Ipsen Pharmaceuticals, this handbook is a valuable resource and roadmap for patients and caregivers faced with a pancreatic cancer diagnosis. Part One addresses immediate needs, including a checklist for newly diagnosed patients; guidance on making treatment decisions; surgery; drug treatments; clinical trials; use of complementary and alternative methods; supportive care; coping; and caring for a loved one.
We hope this guide will empower patients and caregivers to ask bold questions, seek out cutting-edge treatments, and confront the unique challenges of pancreatic cancer head-on, armed with all of the knowledge needed to make informed decisions.
Bulk orders are available to professionals only. For additional copies to share with colleagues or patients, please fill in our book order form. The books are free, but we do charge $20 per carton of books for shipping and handling. Each carton contains 40 books.
At Lustgarten, we are making progress every day in our fight against pancreatic cancer. Our commitment to everyone impacted by pancreatic cancer has never been stronger, and we will continue to fund research until a cure is found. We believe it’s no longer a matter of “if” we are going to conquer this disease. It’s a matter of when.Download Your Copy Now
What is #WeLoveYouAlex?
Even though the Jeopardy! Tournament of Champions has ended, please continue to join the tournament competitors – including “Jeopardy! James” Holzhauer, Dhruv Gaur and Steven Grade – in honoring Alex Trebek and the entire pancreatic cancer community by donating to research. Now through December 31, donate to our #WeLoveYouAlex campaign to increase awareness and funding for pancreatic cancer research.
If you missed it, Dhruv Gaur was the contestant and college champion who answered “We Love You, Alex” during the recent Jeopardy! Tournament of Champions. This answer choked up the beloved game show host and earned Dhruv a seat at The Ellen DeGeneres Show, where he was presented with a $25,000 check from Shutterfly for the Lustgarten Foundation.
As the season of giving approaches, we hope you will join the movement to fund pancreatic cancer research. As Mr. Trebek said when he was first diagnosed, “Keep the faith and we’ll win. We’ll get it done.” With your support, we will definitely be able to “get it done” – by funding more research, we are moving closer to finding a cure.
We WELCOME you to our community and THANK YOU for your life-changing support!
Play Along to Support Research!
Join with Jeopardy! fans who are committed to raising awareness and funding for pancreatic cancer research! During the Jeopardy! Tournament of Champions episodes airing on November 14-15, viewers are encouraged to donate $1 to the Lustgarten Foundation for each answer they guess correctly. And, thanks to separate funding to support administrative expenses, 100% of your donation goes directly to pancreatic cancer research.
Jeopardy! champion Steven Grade organized this play-along game in honor of host Alex Trebek and in memory of Larry Martin, a Jeopardy! Teachers Tournament champion who passed away from pancreatic cancer earlier this year.
Grade tweeted, “Play one night, play both nights, donate an amount that is right for you, or help spread the word to Jeopardy! watchers and non-watchers alike–every little bit helps, and every little bit helps to honor Alex, Larry, and all those who are fighting and have fought pancreatic cancer.” Donate Now.
Alex Trebek Lends His Voice To Pancreatic Cancer Awareness Month
We are grateful that Jeopardy! host Alex Trebek has shared his story and helped to raise global awareness for pancreatic cancer and Pancreatic Cancer Awareness Month with his PSA for the World Pancreatic Cancer Coalition. Join us throughout the month of November as we unveil our new #PutTheUinCURE social media campaign and encourage you to get involved, and as we highlight the need for continued research, more effective treatments, and methods to help diagnose this disease at an earlier stage.
“Keep the faith and we’ll win.” — Alex Trebek
On March 6th, television icon Alex Trebek, who has hosted Jeopardy, America’s Favorite Quiz Show®, since 1984, announced that he was diagnosed with Stage IV pancreatic cancer in a video posted to the show’s official YouTube account. On behalf of our community of patients, caregivers, researchers, loved ones and survivors all impacted by this disease, we are sending Mr. Trebek our thoughts and best wishes for his treatment and recovery.
Mr. Trebek joins more than 56,000 other Americans who will be diagnosed this year. Pancreatic cancer is often called a silent disease because many times no signs or symptoms are noticed until the cancer is in an advanced stage, when surgery is typically not an option and effective treatments are limited.
Mr. Trebek is not letting this prognosis discourage him from fighting. As he shares in his video message, “I plan to beat the low survival rate statistics for this disease…Keep the faith and we’ll win. We’ll get it done.”
At the Lustgarten Foundation, we are relentlessly focused on “getting it done.” Pancreatic cancer research is moving faster than ever before, and there has never been a more hopeful time for patients. The researchers we fund are committed to identifying new treatments and tailoring therapy to each patient. We are dedicated to changing patients’ lives and making sure that many more patients become long-term survivors.
Today and every day, we stand with Mr. Trebek, his loved ones and fans, and the thousands of other patients courageously fighting this disease and inspiring us to support even more research. Please know we are with you as you navigate through this disease, and we will not quit until a cure is found.
KWWL.com: Pancreatic Cancer Remission Rates Remain Low
Boston25 News: Dana-Farber Pancreatic Cancer Specialist Talks Symptoms, Treatments for Disease
News12: Longtime ‘Jeopardy’ Host Alex Trebek Announces Stage 4 Pancreatic Cancer Diagnosis
PIX 11: Fight for Survival
Pancreatic Cancer NewsView All Articles
It’s estimated that more than 56,000 Americans will be diagnosed with pancreatic cancer this year and nearly 46,000 will die from it. Supreme Court Justice Ruth Bader Ginsburg and “Jeopardy!” host Alex Trebek are two well-known patients who have fought it. But a group of patients, who are not celebrities, could help change the future of treatment for others. […]
ERYTECH Announces Publication of its Phase 2b Trial of Eryaspase in Metastatic Pancreatic Cancer in the European Journal of Cancer
ERYTECH Pharma (Nasdaq and Euronext: ERYP), a clinical-stage biopharmaceutical company developing innovative therapies by encapsulating therapeutic drug substances inside red blood cells, today announced that the full results from its Phase 2b trial evaluating eryaspase in metastatic pancreatic cancer are now published online in the European Journal of Cancer. The Phase 2b trial evaluated eryaspase, L-asparaginase encapsulated in […]
Every day, more than 1200 people worldwide are told they have pancreatic cancer. Within 12 months, 80 per cent of them will have succumbed to the disease. It’s one of the most lethal cancers in the world but new research from the University of South Australia could help vastly improve the prognosis for pancreatic cancer […]
CHAPEL HILL — A study from the University of North Carolina Lineberger Comprehensive Cancer Center could help predict resistance to treatments for pancreatic cancer, one of the deadliest cancer types. In Clinical Cancer Research, a journal of the American Association for Cancer Research, researchers led by UNC Lineberger’s Jen Jen Yeh, MD, and Naim Rashid, […]
Now cancer-free for two years, Nick Pifani wants to raise awareness, money — and hope November 21 marks World Pancreatic Cancer Day, a reminder that the disease that took the lives of Steve Jobs and Patrick Swayze — and is currently being battled by Jeopardy! host Alex Trebek — still has an abysmally low survival rate of just 9 percent. However, two-year survivor […]
Cancer cells are masters at avoiding detection, but a new system developed by Yale scientists can make them stand out from the crowd and help the immune system spot and eliminate tumors that other forms of immunotherapies might miss, the researchers report Oct. 14 in the journal Nature Immunology. The new system reduced or eliminated […]
Rafael Pharmaceuticals Reaches Milestone of 100 Patients Enrolled in Pivotal Phase 3 Trial (AVENGER 500) of CPI-613®️ (devimistat) for Patients with Metastatic Pancreatic Cancer
Rafael Pharmaceuticals, Inc. (“Rafael” or the “Company”), a leader in the growing field of cancer metabolism-based therapeutics, today announced that it has enrolled 100 patients in its pivotal Phase 3 clinical trial for metastatic pancreatic cancer (AVENGER 500). The multicenter, open-label, randomized trial is evaluating the efficacy and safety of Rafael’s lead compound CPI-613®️ (devimistat) in […]
A University of Rochester Wilmot Cancer Institute research team reports that combining a type of radiation therapy with immunotherapy not only cures pancreatic cancer in mice, but appears to reprogram the immune system to create an “immune memory” in the same way that a vaccine keeps the flu away. The result is that the combination […]
I have been studying and treating cancer for 35 years, and here’s what I know about the progress made in that time: There has been far less than it appears. Despite some advances, the treatments for most kinds of cancer continue to be too painful, too damaging, too expensive and too ineffective. The same three […]
Response rate to albumin-bound paclitaxel plus gemcitabine plus cisplatin treatment among patients with advanced pancreatic cancer: A phase 1b/2 pilot clinical tria
Adding a drug that targets a molecular vulnerability in pancreatic cancer could provide substantial benefit to patients, according to a clinical trial study by the HonorHealth Research Institute and the Translational Genomics Research Institute (TGen), an affiliate of City of Hope, in conjunction with the Pancreatic Cancer Research Team and Cancer Research And Biostatistics. Published […]