Navigating Pancreatic Cancer
We are here to empower you to ask bold questions, seek out the best treatment options, and face the unique challenges of pancreatic cancer head-on. We want to give you the resources and information you need to make informed decisions that are best for you.
As overwhelming as a pancreatic cancer diagnosis is, it is important to act quickly and put a treatment plan into place. Treatment should ideally begin within one month after you receive your diagnosis. Understand your disease. Thoroughly understand what stage of pancreatic cancer you have and inquire about having your blood and tumor genetically sequenced. […]
If you have been diagnosed with pancreatic cancer, a clinical trial may be your best treatment option. Many clinical trials are underway for patients in all stages of the disease and may involve new combinations of currently available drugs or new drugs that have worked in other cancers. No matter where you are in your journey, we encourage you to learn more about clinical trials.
LET’S WIN! Pancreatic Cancer A Dynamic Way to Share Information Recognizing that there is an urgent need for patients to communicate amongst themselves and with the medical community about potentially life-changing treatments and clinical trials, we are proud to be affiliated with Let’s Win. Let’s Win is an interactive online community where patients and families […]
Pancreatic Cancer Connections is online social community that provides a safe space for pancreatic cancer patients and their loved ones to share their experiences, get valuable coping resources, and support one another. Patients interact with others who are facing a pancreatic cancer and can post questions to the board or message other members privately. This community forum is a valuable resource for patients, caregivers, and their loved ones to refer to at various stages of their treatment and recovery.
Patients and loved ones can sign up for Pancreatic Cancer Connections at no cost and will be welcomed into an engaging and supportive community to discuss topics including treatment options, nutrition, and coping with the disease. Pancreatic Cancer Connections is hosted by Inspire, a leading healthcare social network that connects more than 1,000,000 patients and caregivers.
A Dad’s Story: Facing Pancreatic Cancer
Fred DeAlmeida, 50, and his wife Jennifer, 46, never expected to be facing Stage IV pancreatic cancer, and especially not at such a young age. Fred was diagnosed on his 50th birthday earlier this year, and in a moment, the beautiful life he and Jennifer had built together was torn apart. Now, Fred’s time is consumed with chemotherapy treatments, blood tests and scans, and Jennifer is relentlessly focused on searching for information on therapies and clinical trials in a race to get ahead of this aggressive disease.
Hope For Pancreatic Cancer Patients
After multiple Emmy award-winning “Jeopardy!” host, Alex Trebek, announced that he had stage 4 pancreatic cancer, the news has drawn attention to the disease and raised questions related to the latest advances in diagnosis and treatment of pancreatic cancer.
Dr. Aaron Sasson, director of the Pancreatic Cancer Center at Stony Brook University and chief of the Surgical Oncology Division, said little has changed when it comes to a doctor’s ability to diagnose the cancer any earlier.
“But we have made improvements in imaging of pancreatic cancer,” he said. “That is, the quality of CT scans and MRIs has improved over the years.”
Kerri Kaplan, president and CEO of the Lustgarten Foundation, said the disease has been “notoriously difficult” to detect and treat. The organization is dedicated to pancreatic cancer research.
“Although great strides are being made to detect pancreatic cancer earlier, this disease has few warning signs and vague symptoms that may range from back pain, fatigue and loss of appetite, amongst others,” she said in an email.
Kaplan added, “Even when there are early signs and symptoms, they may easily be attributed to other illnesses. Because of this, patients are often diagnosed when the cancer is at an advanced stage or has spread to other organs — making them ineligible to undergo surgery, which is the best chance at long-term survival.”
New Chief Medical Advisor
Internationally Renowned Cancer Immunologist Elizabeth M. Jaffee, M.D. Joins the Lustgarten Foundation
The Lustgarten Foundation announced today the appointment of Elizabeth M. Jaffee, M.D., the immediate past president of the American Association for Cancer Research (AACR), as its new Chief Medical Advisor. Dr. Jaffee is an internationally recognized expert in cancer immunology, with specific expertise in preclinical and early clinical development of immunotherapies for pancreatic cancer.
Pancreatic Cancer NewsView All Articles
Lung and pancreatic cancers are very often difficult to treat, especially when the cancer has spread to other organs. Today, the five-year survival rate for lung cancer that has spread is 5%. For pancreatic cancer, it’s 3%. Now a group of researchers have developed a system to use computers to increase a patient’s odds. One […]
If the American Cancer Society’s projections prove accurate, more people will die from pancreatic cancer than from breast, brain, ovarian or prostate cancer this year. One reason pancreatic cancer is so lethal is its resistance to traditional chemotherapy. But West Virginia University surgical oncologist Brian Boone is exploring whether FOLFIRINOX–a new combination of cancer drugs–can improve outcomes in patients […]
A new pilot study demonstrated the feasibility of using molecular tumor markers as the basis for selecting the chemotherapeutic agents to use in patients with metastatic pancreatic cancer. Based on these promising results a larger phase II clinical trial has been initiated using molecular biomarkers to guide the choice of second-line therapies. The design, results, […]
Pancreatic cancer kills more than 45,000 people in the U.S. each year, mostly due to the fact that it is detected too late for surgery to remove and halt the spread of the cancer. Cysts in the pancreas sometimes develop into the invasive cancer, depending on the type of cyst, but such growths often are […]
AstraZeneca and Merck & Co’s Lynparza helped patients with advanced pancreatic cancer who carry BRCA gene mutations go nearly twice as long without their disease worsening than those who received a placebo, according to data from a late-stage clinical trial presented on Sunday. BRCA mutations are typically linked with breast and ovarian cancers, but occur […]
Alex Trebek released a statement today that his doctors says he’s in “near remission” of his advanced pancreatic cancer that was diagnosed in March, according to the Associated Press. The report continues with Trebek saying some of the tumors have shrunk by more than 50 percent; a result his doctors are calling “mind-boggling.” This, from […]
Pancreatic ductal adenocarcinoma, or PDAC, is the third most common cause of cancer-related death in the United States, with a median 5-year survival rate of only 9%. Incidence of this cancer is rising, an effect of an aging population, improved diagnostics and the so-called “diabesity” epidemic.However, there have been several recent advances in PDAC, from […]
Bruce Toma, 69, is making plans for traveling and sprucing up his house. That’s a far cry from the fall of 2017, when he was diagnosed with pancreatic cancer. The disease and chemo left him in terrible shape. “I was violently sick, I was losing weight terribly. And what I would eat, I couldn’t keep […]
This year in America, some 56,770 people will be stricken with pancreatic cancer — and 45,750 people will die from it. Those estimates from the American Cancer Society (ACS) paint a grim portrait of the disease, which researchers have pegged as the fourth-leading cause of cancer-related deaths in the country. Pancreatic cancer, which affects a […]
Alex Trebek, the longtime host of “Jeopardy!,” appeared on “Good Morning America” on Wednesday for a frank interview about his experience with Stage 4 pancreatic cancer, including his struggle with depression during chemotherapy. “My oncologist tells me I am doing well, even though I don’t always feel it,” Mr. Trebek said on the ABC morning […]