Navigating Pancreatic Cancer
We are here to empower you to ask bold questions, seek out the best treatment options, and face the unique challenges of pancreatic cancer head-on. We want to give you the resources and information you need to make informed decisions that are best for you.
As overwhelming as a pancreatic cancer diagnosis is, it is important to act quickly and put a treatment plan into place. Treatment should ideally begin within one month after you receive your diagnosis. Understand your disease. Thoroughly understand what stage of pancreatic cancer you have and inquire about having your blood and tumor genetically sequenced. […]
If you have been diagnosed with pancreatic cancer, a clinical trial may be your best treatment option. Many clinical trials are underway for patients in all stages of the disease and may involve new combinations of currently available drugs or new drugs that have worked in other cancers. No matter where you are in your journey, we encourage you to learn more about clinical trials.
LET’S WIN! Pancreatic Cancer A Dynamic Way to Share Information Recognizing that there is an urgent need for patients to communicate amongst themselves and with the medical community about potentially life-changing treatments and clinical trials, we are proud to be affiliated with Let’s Win. Let’s Win is an interactive online community where patients and families […]
Pancreatic Cancer Connections is online social community that provides a safe space for pancreatic cancer patients and their loved ones to share their experiences, get valuable coping resources, and support one another. Patients interact with others who are facing a pancreatic cancer and can post questions to the board or message other members privately. This community forum is a valuable resource for patients, caregivers, and their loved ones to refer to at various stages of their treatment and recovery.
Patients and loved ones can sign up for Pancreatic Cancer Connections at no cost and will be welcomed into an engaging and supportive community to discuss topics including treatment options, nutrition, and coping with the disease. Pancreatic Cancer Connections is hosted by Inspire, a leading healthcare social network that connects more than 1,000,000 patients and caregivers.
GENetic Education, Risk Assessment
Genetics play a role in up to 10 percent of pancreatic cancer cases. However, family members of pancreatic cancer patients often are not aware that certain genetic mutations can be passed down, which is why having information about genetic risk is so important. The GENERATE (GENetic Education, Risk Assessment, and TEsting) Study is designed for people who have a close relative with pancreatic cancer that was caused by an inherited mutation in a gene. The goal of this study, which will enroll up to 1,000 participants, is to improve genetic testing and cancer prevention in family members of pancreatic cancer
patients with identifi ed mutations.
Navigating Pancreatic Cancer
A Guide for Patients & Caregivers
Receive Your Free Copy
Patients and caregivers can also request a free hard copy of this book at email@example.com. Please write book request in the subject line and provide your name, mailing address, telephone number and email address.
Download a free copy of Navigating Pancreatic Cancer: A Guide for Patients and Caregivers
Our updated Navigating Pancreatic Cancer: A Guide for Patients & Caregivers handbook is here! Thanks to an educational grant from Celgene and support from Ipsen Pharmaceuticals, this handbook is a valuable resource and roadmap for patients and caregivers faced with a pancreatic cancer diagnosis. Part One addresses immediate needs, including a checklist for newly diagnosed patients; guidance on making treatment decisions; surgery; drug treatments; clinical trials; use of complementary and alternative methods; supportive care; coping; and caring for a loved one.
We hope this guide will empower patients and caregivers to ask bold questions, seek out cutting-edge treatments, and confront the unique challenges of pancreatic cancer head-on, armed with all of the knowledge needed to make informed decisions.
Bulk orders are available to professionals only. For additional copies to share with colleagues or patients, please fill in our book order form. The books are free, but we do charge $20 per carton of books for shipping and handling. Each carton contains 40 books.
At Lustgarten, we are making progress every day in our fight against pancreatic cancer. Our commitment to everyone impacted by pancreatic cancer has never been stronger, and we will continue to fund research until a cure is found. We believe it’s no longer a matter of “if” we are going to conquer this disease. It’s a matter of when.Download Your Copy Now
Jeopardy! The Greatest Of All Time
Who is the greatest Jeopardy! contestant of all time?
Answer: Tune in Tuesday, January 14th as the tournament continues!
Watch (and play along!) as Ken Jennings, Brad Rutter, and James Holzhauer (aka ‘Jeopardy James’) compete for the #JeopardyGOAT title in the “Greatest of All Time” tournament. The first contestant to win three matches will go down in history as the #JeopardyGOAT.
You can cheer your favorite contestant on or start your own #JeopardyGOAT tournament from the comfort of your own home. Invite friends and family over for a viewing party and challenge them to participate in a virtual tournament. For each correct answer, support the Lustgarten Foundation by donating $1, or another amount of your choosing, to pancreatic cancer research. Whether it’s $10, $100, or $1,000, every dollar makes a difference and 100% of every donation goes directly to pancreatic cancer research.
What is #WeLoveYouAlex?
Even though the Jeopardy! Tournament of Champions has ended, please continue to join the tournament competitors – including “Jeopardy! James” Holzhauer, Dhruv Gaur and Steven Grade – in honoring Alex Trebek and the entire pancreatic cancer community by donating to research. Now through December 31, donate to our #WeLoveYouAlex campaign to increase awareness and funding for pancreatic cancer research.
If you missed it, Dhruv Gaur was the contestant and college champion who answered “We Love You, Alex” during the recent Jeopardy! Tournament of Champions. This answer choked up the beloved game show host and earned Dhruv a seat at The Ellen DeGeneres Show, where he was presented with a $25,000 check from Shutterfly for the Lustgarten Foundation.
As the season of giving approaches, we hope you will join the movement to fund pancreatic cancer research. As Mr. Trebek said when he was first diagnosed, “Keep the faith and we’ll win. We’ll get it done.” With your support, we will definitely be able to “get it done” – by funding more research, we are moving closer to finding a cure.
We WELCOME you to our community and THANK YOU for your life-changing support!
Play Along to Support Research!
Join with Jeopardy! fans who are committed to raising awareness and funding for pancreatic cancer research! During the Jeopardy! Tournament of Champions episodes airing on November 14-15, viewers are encouraged to donate $1 to the Lustgarten Foundation for each answer they guess correctly. And, thanks to separate funding to support administrative expenses, 100% of your donation goes directly to pancreatic cancer research.
Jeopardy! champion Steven Grade organized this play-along game in honor of host Alex Trebek and in memory of Larry Martin, a Jeopardy! Teachers Tournament champion who passed away from pancreatic cancer earlier this year.
Grade tweeted, “Play one night, play both nights, donate an amount that is right for you, or help spread the word to Jeopardy! watchers and non-watchers alike–every little bit helps, and every little bit helps to honor Alex, Larry, and all those who are fighting and have fought pancreatic cancer.” Donate Now.
Alex Trebek Lends His Voice To Pancreatic Cancer Awareness Month
We are grateful that Jeopardy! host Alex Trebek has shared his story and helped to raise global awareness for pancreatic cancer and Pancreatic Cancer Awareness Month with his PSA for the World Pancreatic Cancer Coalition. Join us throughout the month of November as we unveil our new #PutTheUinCURE social media campaign and encourage you to get involved, and as we highlight the need for continued research, more effective treatments, and methods to help diagnose this disease at an earlier stage.
“Keep the faith and we’ll win.” — Alex Trebek
On March 6th, television icon Alex Trebek, who has hosted Jeopardy, America’s Favorite Quiz Show®, since 1984, announced that he was diagnosed with Stage IV pancreatic cancer in a video posted to the show’s official YouTube account. On behalf of our community of patients, caregivers, researchers, loved ones and survivors all impacted by this disease, we are sending Mr. Trebek our thoughts and best wishes for his treatment and recovery.
Mr. Trebek joins more than 56,000 other Americans who will be diagnosed this year. Pancreatic cancer is often called a silent disease because many times no signs or symptoms are noticed until the cancer is in an advanced stage, when surgery is typically not an option and effective treatments are limited.
Mr. Trebek is not letting this prognosis discourage him from fighting. As he shares in his video message, “I plan to beat the low survival rate statistics for this disease…Keep the faith and we’ll win. We’ll get it done.”
At the Lustgarten Foundation, we are relentlessly focused on “getting it done.” Pancreatic cancer research is moving faster than ever before, and there has never been a more hopeful time for patients. The researchers we fund are committed to identifying new treatments and tailoring therapy to each patient. We are dedicated to changing patients’ lives and making sure that many more patients become long-term survivors.
Today and every day, we stand with Mr. Trebek, his loved ones and fans, and the thousands of other patients courageously fighting this disease and inspiring us to support even more research. Please know we are with you as you navigate through this disease, and we will not quit until a cure is found.
KWWL.com: Pancreatic Cancer Remission Rates Remain Low
Boston25 News: Dana-Farber Pancreatic Cancer Specialist Talks Symptoms, Treatments for Disease
News12: Longtime ‘Jeopardy’ Host Alex Trebek Announces Stage 4 Pancreatic Cancer Diagnosis
PIX 11: Fight for Survival
Pancreatic Cancer NewsView All Articles
Researchers identify five subtypes of pancreatic cancer, uncovering new opportunities for targeted treatment of the aggressive disease. Researchers at the Ontario Institute for Cancer Research (OICR) and the University Health Network (UHN) have discovered detailed new information about the subtypes of pancreatic cancer. A better understanding of the disease groups may lead to new treatment […]
In mouse models, the work uncovers a new potential target to improve immunotherapy approaches to the deadly disease. A multidisciplinary Michigan Medicine team is shedding new light on the role of regulatory T cells in pancreatic cancer — and, in mouse models, have uncovered a new potential target to improve immunotherapy approaches to the deadly […]
A key immune signal has a previously unknown role in turning off the immune system’s attack on pancreatic cancer cells, a new study finds. Led by researchers at NYU Grossman School of Medicine, the study found that an immune signaling protein, interleukin-1β (IL-1β), is made and released by pancreatic tumor cells. This was shown to […]
Overall cancer survival has dramatically improved over the past two decades. However, the prognosis for pancreatic cancer remains bleak, with five-year survival at just 9 percent. Patients usually don’t have symptoms until the cancer is advanced, making early diagnosis and treatment a challenge. Now, a study by researchers at The Ohio State University Wexner Medical […]
U.S. Rep. John Lewis is expected to remain in Washington to receive treatment for stage 4 pancreatic cancer, a diagnosis he announced Sunday. That treatment, according to medical experts, is likely to focus on preventing the disease from spreading further and inhibiting symptoms from growing worse. Dr. Bassel El-Rayes is an oncologist and clinical researcher […]
Lynparza approved in the US as a 1st-line maintenance treatment of germline BRCA-mutated metastatic pancreatic cancer
Lynparza reduced the risk of disease progression or death by 47% in patients whose disease had not progressed on at least 16 weeks of a 1st-line platinum-based chemotherapy regimen Only PARP inhibitor approved in germline BRCA-mutated metastatic pancreatic cancer AstraZeneca and MSD Inc., Kenilworth, N.J., US (MSD: known as Merck & Co., Inc. inside the […]
AstraZeneca and Merck & Co., said that the US Food and Drug Administration Oncologic Drugs Advisory Committee voted 7 to 5 to recommend Lynparza or olaparib as a 1st-line maintenance monotherapy for patients with germline BRCA-mutated metastatic adenocarcinoma of the pancreas (pancreatic cancer), whose disease has not progressed following 1st-line platinum-based chemotherapy. In August 2019, […]
When it comes to medical advances, what we’ve seen in 2019 might seem like it’s straight out of science fiction. A synthetic skin that allows robots to “feel”? Medicine tailored to match your individual genes? Pill boxes smart enough to keep tabs on whether or not you’re taking your medication?
It’s estimated that more than 56,000 Americans will be diagnosed with pancreatic cancer this year and nearly 46,000 will die from it. Supreme Court Justice Ruth Bader Ginsburg and “Jeopardy!” host Alex Trebek are two well-known patients who have fought it. But a group of patients, who are not celebrities, could help change the future of treatment for others. […]
ERYTECH Announces Publication of its Phase 2b Trial of Eryaspase in Metastatic Pancreatic Cancer in the European Journal of Cancer
ERYTECH Pharma (Nasdaq and Euronext: ERYP), a clinical-stage biopharmaceutical company developing innovative therapies by encapsulating therapeutic drug substances inside red blood cells, today announced that the full results from its Phase 2b trial evaluating eryaspase in metastatic pancreatic cancer are now published online in the European Journal of Cancer. The Phase 2b trial evaluated eryaspase, L-asparaginase encapsulated in […]